It’s been an exciting week around here! Ben started Kindergarten last Thursday, and Ellie started preschool today.
The kids have been home with me since covid started. I don’t regret that decision. I was immunocompromised and it was a pandemic. So we kept the kids home. But it was so hard. I was with them All. The. Time.
Now I finally have some time. Three mornings a week. It’s unbelievable really lol. This morning I went to Target to walk around. Just for fun. Because I COULD. (I may have bought a decorative pumpkin or two. You really can’t have too many cute pumpkins).
There’s a million things I need and want to do during the time Ellie’s in school. But I’m resisting the urge to try to catch up on everything all at once. So I’m proud of myself. I took some time to rest this morning. Watch TV. Drink coffee. It was amazing.
Moms aren’t good at taking “me time” or self care time. I’m really bad at it. But I’m working on it!
Now I’m going to pick up Ellie and I’m so excited to see her and see how the first day went. 😊
Ok, technically it’s still summer, but I don’t care haha. It’s September so I’m in full fall mode over here!
Ben is starting kindergarten next week! His teacher requested a family photo so we took this one last night and I just love it. Everybody is looking at the camera AND smiling, which is a family photo miracle. 😜
(Ellie found this old hat of Ben’s and has been wearing it for like 3 days straight 🤷🏼♀️)
It’s been a busy summer. I’ve been slowly feeling better — fewer stomach issues, a little more energy. But I’ve had some new peripheral neuropathy (numbness and tingling and painful cold in my hands and feet) that may be related to chemo or may not. It’s odd that it came on after treatment. Usually neuropathy happens during chemo. I’ve also been having joint pain, I get lightheaded often, and I still get so tired after relatively little activity.
For a cancer patient, I’m doing great. For a 37 year old, I could be doing better. I’d like to feel my age, and right now I’m dealing with a body that is still running on empty. Long-lasting treatment side effects, post-treatment anxiety, pandemic stress, not enough time for myself, dealing with the kids 24/7.. it’s all taken a toll. So anyway I’m hopeful I can start feeling GOOD (instead of “not too bad,” which is usually how I’ve been answering when people ask how I am.) Doing some tests to see if there’s any vitamins or meds or anything that might help.
That being said, I’m only 4 months out from finishing treatment, and I need to give myself more time. The progress is happening but it’s very slow. It feels like two steps forward, one step back. But I am improving and I need to remember things will continue to get better with time.
I made the decision this summer to not pursue a teaching position for this fall. It was so hard. I was looking forward to going back to work so much. But I know my body isn’t ready. So although I’m disappointed, I’m going to be a stay at home mom for a while (by CHOICE, not because of cancer and covid like last year). I’m looking forward to the routine of the school year. Although it may not seem like a typical year to most teachers, it will be a return to normalcy in our lives that I crave.
Ben will start school next week, and the following week Ellie will start preschool 3 mornings a week. Which means.. I get 3 mornings a week to myself. 😁 So I will finally have some time for me to focus on me! To rest. To recover.
It makes me happy that I’ll be available as Ben starts kindergarten and Ellie starts preschool. And I’ll have some one-on-one time with Ellie, which I haven’t had much of since she was a baby. So I’m really looking forward to that too.
I read a quote a while back that really resonated with me.
Obviously my life hasn’t gone according to plan. Understatement of the year. But here I am, I can’t change the circumstances, but my priorities have shifted. I’m enjoying the sweet and silly little moments with Eric and the kids. I laugh more. Living in the moment has never been a strength of mine. Nothing like getting cancer in your 30s to help teach you how to live in the moment! Does that mean I’m thankful I got cancer so I could learn that??? 😂 Hell no.
But it does mean I’m going to try to live more fully. Be more present. Be more thankful for my wonderful husband and kids. Be more open to different life paths and find the joy along the way. ❤️
Last week we went up to Vermont to visit my family. It was exactly what I needed! Family, friends, delicious meals, beautiful sunsets, beach day, awesome playground, boat ride, s’mores, exploring, and plenty of tequila. 😋
It was not easy for me to do this trip. Packing for a week away, long car ride with cranky kids, being more active than I’m used to… it was a lot. I’m still recovering. Haha. But I’m SO glad we did it and I’m glad I was able to make the most if it!
Many thanks to my aunt and uncle for hosting us, and to my cousin for playing with the kids so much! There’s a saying about when you go away with little kids, how it’s not a vacation, it’s just a trip – still just as much work, just in a different location. Lol. But thanks to my family, I did feel like we were on vacation! Love you guys! ❤️
It may not seem like a big deal, but I took the kids to a playground by myself this morning. The fact that I even considered doing this is a sign that I’m improving.
(Granted it was a small playground 2 minutes from our house, we went early to avoid the heat, and we only stayed a half hour. Lol.)
I’ve had it in my chest for a year now to make chemo and immunotherapy infusions easier. But now that I’m done with treatment I don’t need it. I’ve had kind of a love/hate relationship with my port. I loved it because it meant I didn’t have to get poked a million times while nurses struggled to get an IV in my arm. (My veins are not the most cooperative). It really did make infusions SO much easier on me.
But I’ve hated having it under my skin – a constant physical reminder of the cancer. Plus, Ellie likes to jump on me and had a tendency to elbow me right in the port. 😬
So to be able to get the port taken out is really another reason to celebrate! It’s very symbolic for me. No more port = no more cancer. 😊
It’ll take a few days to recover from the procedure though. I was under conscious sedation and I’m still a little woozy from the meds at the moment. I’m definitely sore and I can’t pick up Ellie for a week or so, which she is not happy about lol.
But it’s all worth it. Another milestone for me! Cheers! 🥂
I’ve been done with treatment for 6 weeks and it’s been a rollercoaster of emotions.
I am grateful for my health. Enjoying the sweet and silly moments with Eric and the kids. But also anxious. Pissed off. Depressed. Searching for meaning in life. 🤔😆 Looking for signs of what I want to do next – do I want to go back to teaching? A few months ago my answer was yes without a doubt. Now? Well, I just don’t know.
I had my first annual routine mammogram on Thursday. (It was the first one since before surgery last year.) It was incredibly stressful and I definitely had a panic attack in the waiting room, but the most important thing is that the results were good. 😊😊😊No evidence of cancer. 👏🏻
Go follow @ohyouresotough on instagram! Love her art.
I wish the doctors had prepared me more for what that mammogram would be like though. I thought it would be a screening mammogram where they take some images and then I’d be done. I didn’t realize it would be a diagnostic mammogram, where the radiologist immediately looks at the images while you wait in the waiting room, and if there is any question or concern, you have to go back in to get more images taken. Well, of course they needed more images for me. (Turned out to be nothing but there were two spots that needed a closer look.)
Side note- I will never understand why people decide to be mammogram technicians if they clearly have no compassion for others. I understand that technicians are not supposed to share what they’re seeing on the scans, but you know what they can and should do?
Smile. Use a kind voice. Tell me it’s COMMON to have to take more images, (especially if it’s the first mammogram since surgery so obviously things look different.) Recognize that I’m nervous and validate that what I’m feeling is normal. Distract me! Tell me about your kids. Your pets. The weather. I don’t care. ANYTHING to get my mind off the stress of the scan.
Definitely me on Thursday morning 😂
If there’s one thing cancer has taught me, it’s to speak up for myself. I had 2 appointments after the mammogram (followups with the surgeon and oncologist) and I told them both how upset I was about the mammogram experience. About the awful technician but also that I wasn’t prepared enough for what it would be like. Somebody should have gone over what to expect with me.
I think doctors forget sometimes that cancer patients are people. Not just a diagnosis. People. People who have gone through hell and back and just need a little extra handholding (ok, metaphorical handholding, in a covid world 😜). We need reassurance. We need acknowledgment. We need kindness.
Turns out today is National Cancer Survivors Day. I wrote this whole blog post before I found that out, and then immediately felt guilty for all my complaining. Because here I am, cancer free, and I’m incredibly lucky. Lucky to have found the lump when I did, lucky to have access to amazing doctors, lucky to have the support of wonderful family and friends. Lucky to be alive. I thought about deleting this whole post but I actually think it’s important that I don’t. Being a survivor is hard. Going through active treatment is hard. Being a family member of someone with cancer is hard. No matter how cancer affects you, it’s hard. As my therapist keeps telling me, you feel how you feel, and you don’t need to apologize for that.
More than anything these days I’m realizing I need to be kind to myself. I need to say how I’m really feeling. I need to not be so hard on myself. I need to prioritize my physical and emotional recovery.
Sending love to any other cancer survivors who may be reading this. ❤️
Well I have to say this birthday was way better than last year. Granted the bar was set pretty low – last year I was getting chemo on my birthday. Wasn’t tough to beat that today. 🤣
Today was beautiful! Sunny and warm. Spent a good part of the day outside enjoying the weather. Went for a walk, ate lunch on the back deck, did some gardening. Such a nice day! 😊
Last year I wrote this:
I am cancer free! 😊 And the pandemic isn’t over but I do feel hopeful we’re finally heading in the right direction. 👍🏻
It’s interesting to me that I’ve been feeling more emotional in the past few weeks than I felt all of last year. As I’m entering this “survivorship” phase, it’s quite overwhelming.
Anxiety, so much anxiety. Exhaustion. Anger. Depression. Stress. Guilt. More exhaustion.
I know, I know. I’m done with treatment and I’m going to be fine. So everything *should* be great!! (I hate the word “should,” by the way).
Well, I do think things will be fine. But I also think it’s going to take me a while to get there. I think the only way I’ve survived this last year is by essentially being in denial most of the time. It allowed me to just do what I needed to do to get through all those treatments. I don’t think I’ve even started to process everything I’ve gone through. I’ve recently started talking with a therapist to help me navigate all these emotions. She is wonderful and has been so helpful. 🙌🏻
Now that I’m done with treatment, and I’m fully vaccinated 👏🏻, I’m wanting to go out and do things. But my body isn’t ready. Our good friends had a birthday party for their son last weekend. I so badly wanted to go, and felt like I could do it. We stayed for a few hours, the kids had a blast, and I was so glad to be there to celebrate. But I paid the price when I got home and I literally couldn’t get out of bed the rest of the day. I was so drained. Mentally and physically.
Today I was so excited to actually go inside Target and walk around (I missed Target so much 😛 – we’ve been doing drive-up orders during the pandemic). I had to leave after 15 minutes because I wasn’t feeling great and I was so incredibly exhausted. Not to mention there was a guy walking around without a mask, despite Target’s mask rule. Makes me so mad.
I know I will continue to do too much too soon. It’s just who I am. I’m done with treatment so I want to be able to do anything I want!! But I need to take baby steps. I just finished treatment last week. The doctor said it may take at least a month or two to start feeling like myself again.
I know this is temporary. And hopefully over the next few months I can figure out a pace of what works for me. I just need to be patient (I’m not a patient person lol).
This quote always makes me feel better. Regardless of what you’re going through, anyone else forget to breathe sometimes? ❤️
Today is the last day of immunotherapy treatment. It’s also the last day of ALL my cancer treatments! 👏🏻👏🏻👏🏻👏🏻
Since January 2020 I’ve completed chemotherapy, a lumpectomy, radiation, and immunotherapy.
It’s been a VERY long road, but the treatments worked, there is “no evidence of disease” (aka the cancer is GONE) and hopefully I’ll never have to deal with this again.
I’ll still have follow ups and appointments with the million doctors I now have… my oncologist, my radiation oncologist, my cardio oncologist, my surgeon, etc. I’ll have annual mammograms which I’m sure will be stressful.
But for today I’m not going to worry about any of that. I’m going to CELEBRATE!!!! 🎉🥂🧁😊 I’m done!!! I did it!
I honestly couldn’t have done it without everyone’s support. Everyone who has read this blog, thank you. I said from the beginning that writing is therapeutic for me and it helps me process my feelings. So thanks for reading!
Thanks also to everyone who sent well wishes, prayers, meals, donations, and care packages. The amount of love and support I’ve received over the last year has been heartwarming. I appreciated it so much! Thank you!!! ❤️❤️❤️❤️
Immunotherapy infusion #10 out of 13 this morning. I’m getting there!! 😊
Oh, and big news – Dana Farber got new masks – cute peach colored ones instead of blue. 😜 (I know, I know, I really have no life if this is news lol).
I can’t wait to be done. Looking ahead, I think my last infusion will be in April. Then I assume I’ll have to get my port taken out at some point, not sure when. I’ll have another mammogram this summer. Many other follow up appointments, I’m sure.
It seems like I’ll be in Phase 2 Group 4 for the vaccine (people with one medical condition). Right now in Massachusetts they’re on Phase 2 Group 1 (people 75+). Hoping I can get the vaccine by April or May, but that may be overly optimistic.
Right now I’m focusing on getting myself as healthy as I can. I spent most of 2020 being pretty sedentary and eating a lot of carbs to help with the chemo nausea. It’s time to focus on healthy eating and being active so I can give myself the best possible chance of staying cancer free! I started the health app Noom six weeks ago and I’m so happy with how it’s going. I’m eating more nutritious foods, drinking more water, being more active, and I’m seeing the results already. I’m down 11 pounds, and I feel so much healthier and have more energy. (If anyone is considering Noom, I’m happy to tell you more about it. I really like the program).
Anyway, I’m ready to MOVE ON with my life. I can’t wait to get a job. See family and friends more often. Send the kids back to school. (Ben’s going to kindergarten in September!) Even little things like grocery shopping (never thought I’d miss that hahaha). Can’t wait. Still won’t happen for a while until Eric and I are vaccinated but I’m looking forward to so much this year. 😀