Hair Update

I haven’t updated about my hair in a while. It’s been an interesting progression of hair loss. You may remember I used the Paxman scalp cooling cap during chemo to help reduce hair loss. I was told upfront that it works better with certain types of chemotherapy, and they don’t make any guarantees about keeping all your hair.

The scalp cooling worked great through my first 12 weeks of chemo. I barely lost any more hair than usual. During the next round of the more intense chemo, I was told the scalp cooling wouldn’t be as effective because of the stronger meds, but that since I already had the cap, it was worth a shot. I didn’t lose too much more hair during those 8 weeks either.

Ironically in the weeks AFTER chemo, my hair started coming out more and more, and I’m continuing to lose a lot on a daily basis. And although I am starting to get some regrowth, it’s going to take a looong time to get my usual length of hair back.

This is what my hair looks like now. 🤷🏼‍♀️ I wear headbands a lot.

I discovered they make fake “messy buns” and I was able to get one I love! It adds a lot of volume.

I also found out insurance would reimburse me for a wig, so I just got one today! It’s going to take some getting used to, but I like it!! I’m pretty sure my natural hair never looked this good. 😂😂

Next steps

Ok so I went for some more tests last week and have a clearer picture now of what the next few months will look like.

I had another mammogram and ultrasound so that the surgeon would have updated scans before surgery. I think I had unrealistic expectations that the cancer would be all gone, so when the scans showed the tumors were smaller but still there, I was definitely a little bit disappointed. Apparently my tumors are stubborn (I have 3 tumors, all right next to each other in a row.) But they are smaller than they were. The doc who did the ultrasound had a hard time even finding them, so I took that as a good sign. 👍🏻

I saw my oncologist that same day (who I didn’t have an appointment with, but I think he heard I was there and probably seemed stressed so he popped in.. he’s a really nice guy). He reiterated that he is happy with my progress. He can’t feel the tumors anymore. I responded well to chemo. He is still optimistic I’m going to be just fine. I definitely needed to hear that.

It’s a long road though. I’ve known that all along but I had sort of blocked it out and have taken things one step at a time. Which is the only way I could manage it. But now that chemo is done and I’m looking ahead, there is still a lot to do that I’ve known about but was sort of ignoring. Haha. 🤷🏼‍♀️

I’m having a lumpectomy on July 8th. Which is not only a big deal because it’s surgery, but because we will finally know for sure if there is cancer still present in the breast and if there is any cancer in the lymph nodes. Hopefully not, on both counts. But it is likely that there is still some cancer there, based on my scans, so I need to be realistic about that.

They will be removing the tumors and the surrounding tissue during the lumpectomy. They will also remove one or two lymph nodes (to test them while I’m still in surgery). If it shows that cancerous cells are present, they’ll remove the rest of my lymph nodes in my armpit during the same surgery. (There has been no indication so far about anything in my lymph nodes, so cross your fingers they don’t find any surprises.)

I don’t need to stay overnight. Recovery is about 2 weeks, longer if they have to take all my lymph nodes. It’ll take about a week to get results about the tissue they remove from my breast.

In August I’ll start radiation for 4-6 weeks (5 days a week). Plus I have to get an infusion every 3 weeks from August until January (one year from when I started this whole mess). This is the part I’ve been in denial about. I just don’t want to do it. 🤣 The outcome of the biopsy results will determine the drug they give me every 3 weeks. Shouldn’t have too bad of side effects either way though, from what I understand.

Right now I’m enjoying this next week of feeling good before surgery! And I’m looking forward to getting these tumors OUT. 😀

Target run

Never thought making a run to Target would feel like a big deal, but it was pretty great (right, Sarah?? 😀). I did the drive-up option so I didn’t actually have to go in.

Great day for a little drive. Nice and sunny. And I blared the Backstreet Boys as loud as I could the whole way there (man I miss the Backstreet Boys lol). It was awesome. 😎

So nice to go out and do a normal errand. Went for a walk earlier too. Good day so far all around!

(Oh and if anyone was wondering, the shingles are going away, too. They are much better.) 👍🏻

Shingles?!?

Yup. I have shingles. 😳

Sigh.

I got this rash the other day on my neck and head that I thought was weird. Well it’s gotten worse. Painful and very itchy.

I am on an antiviral med now which will hopefully help a bit.

Turns out shingles is common in cancer patients going through chemo because of lowered immune systems. It’s caused by the same virus that causes chickenpox. If you’ve had the chickenpox (which I did as a kid), the virus can lay dormant for years and then get “reactivated” as shingles.

Shingles can be brought on by stress. Lol. I guess you could say I’ve been a little bit stressed lately. 🤣 Ya know, cancer.. and 5 months of chemo… during a pandemic… home with 2 needy kids. And now shingles!

My life is so ridiculous it’s almost funny at this point. 🤷🏼‍♀️🤪🤦🏼‍♀️😂

Hoping that the shingles is just a little bump in the road though and that my treatment will go smoothly from here on out. 🤞🏻

Seriously, 2020, I’VE HAD ENOUGH.

Coffee Time

One thing I’ve really missed over the past 5 months is my morning coffee. Sure I’ve had coffee here and there, but more out of habit than anything else. When I was nauseous it just wasn’t appetizing and I would only have a few sips.

This morning I wanted coffee and it didn’t make me nauseous! And I enjoyed it! Probably for the first time since January. ☕️ ☕️

It’s been over two weeks now since the last chemo treatment and I’m definitely feeling a lot better each day. Still get very tired easily and I have a few lingering side effects. But I’m happy to be on the upswing. 😀👏🏻

DONE!!

Done with chemo! 👍🏻😀👏🏻🥳

Today went fine. My regular nurse Paula wasn’t there. But now that I have the port it’s a lot easier for the nurses to access, so it wasn’t an issue.

Eric’s sister Laura was working today (at the Brigham, next door to Dana Farber), so she came to visit a little bit before my appointments. It was really nice to have the company! 😊

I know the next two weeks will be pretty miserable, but I’m REALLY looking forward to the days after that when I’ll hopefully start feeling better and better all the time!

Birthday! 🎂🎈🎉

Well this is a birthday I’ll never forget. Haha.

Had chemo this am so we celebrated my birthday yesterday. Spent time with the fam, had cupcakes, played outside. It was a nice day. 😊

Today I went in for chemo (#3 out of 4) and the nurses surprised me with a piece of cake and sparkling cider! So sweet.

Chemo went fine. I’m home and just resting.

Definitely feeling the love today! Cards and texts and Facebook messages. Thanks everyone!! 🤗

My Milford friends made me a slideshow of old high school pics and a video of birthday wishes. SO thoughtful and was just what I needed to get me through chemo today. Felt like you guys were all with me today! Love you all 😘😘

We look so young! Probably 2001-2002ish?

Let’s hope next year on my birthday I’ll be cancer free and this pandemic will be over!!!! 🤞🏻 🙏🏻