Feeling good 😎

Haven’t written in a while because we’ve been busy! We celebrated Ben’s 5th birthday this past weekend. Couldn’t have a big party obviously, but we had a few very small get togethers with friends and family.

I’ve been feeling great and it’s been awesome. 😎 I’ve recovered from surgery, and my energy level is back up to normal! 👏🏻 I’ve been able to do a lot more with the kids (which is great. And also really hard. Lol).

Of course I’m not done with treatment, though. Haha. The fun starts up again next week. Immunotherapy starts Monday and radiation starts the week after.

Immunotherapy infusions are once every 3 weeks at Dana Farber. Radiation is everyday Monday-Friday for ~4 weeks at Lahey in Burlington. Both are to help make sure the cancer doesn’t come back. 🤞🏻

The radiation may cause some fatigue and skin irritation, but shouldn’t have other side effects. And the immunotherapy may cause some fatigue and minor stomach issues, but nothing like what I was dealing with before with the chemo. So hopefully it won’t be too bad!

I gotta say, now that I’m feeling pretty good, this pandemic really sucks! 🤣 During chemo I was miserable and didn’t want to do anything anyway. But now I want to go places and do things, and we still can’t do much! How have you all been dealing with this for 5 months already?!?!? Hahaha. Sigh.

Can’t believe tomorrow it’s August. 🤔 What a weird year!

YAAAYYYYY!

I wasn’t expecting the pathology report from surgery for a few more days. But I got the phone call this afternoon and it’s FABULOUS news!

⭐️ They confirmed what they tested during surgery – no cancer in the 2 lymph nodes they took out. 😀

⭐️ I had a “pathological complete response” – which means the tissue they removed where the tumors used to be had “no residual carcinoma.” The chemo did its job! No more cancer! I was not expecting this at all and I’m SO happy! 😀

⭐️ Margins were negative which means the surgeon got the whole area she wanted. No further surgery required. 😀

ALL FABULOUS NEWS!!!!!

(I will still go forward with the existing plan – radiation and every 3 week infusions of meds til January. It’s the standard treatment for my type of cancer).

I got out the captains and coke tonight you guys!!! Time to celebrate!!!

Cheers! 🤣

😀😀😀😀😀😀😀😀😀😀😀😀😀😀😀😀

Feeling pretty good!

I’m surprised that I’m feeling pretty good today, all things considered! 😀

I was able to sleep fairly well last night. I slept sitting up for a while and then was able to get comfortable on my side with the help of a few extra pillows.

Today I’ve been keeping up with the pain meds and so the pain isn’t too bad! Under my arm hurts the most, where they took the 2 lymph nodes. Interestingly the area where they took the tumors out doesn’t hurt as bad.

I’ve been icing the whole area on and off as they recommended, and that helps a lot with the pain.

My parents and Eric are taking care of the kids so I’ve been able to rest. 😊

The hardest part is that I can’t pick up or carry anything over 5 pounds, so I can’t pick up Ellie for 2 weeks. Which I almost forgot this morning when I was half asleep and was going to go pick her up out of the crib. 🤦🏼‍♀️ Luckily Eric reminded me haha. (Good sign though if I’m feeling decent enough to even think about picking her up!)

Starting tomorrow I have some light stretches I need to do for my arm. Because they took the 2 lymph nodes out it’s a little stiff and I’m afraid to move it too much at the moment. The stretches should help.

Other than that I plan on taking it easy for the next week or so. 😊

Good news!

Surgery went well! I’m in recovery now.

Great news – the few lymph nodes they removed and tested didn’t show cancer so they didn’t have to remove them all! 👍🏻😊👍🏻😊

I’m def in some pain but that’s to be expected. Eric is coming to pick me up soon so I can go home and rest.

It’s done! The tumors are out! 😀😀😀

Next steps

Ok so I went for some more tests last week and have a clearer picture now of what the next few months will look like.

I had another mammogram and ultrasound so that the surgeon would have updated scans before surgery. I think I had unrealistic expectations that the cancer would be all gone, so when the scans showed the tumors were smaller but still there, I was definitely a little bit disappointed. Apparently my tumors are stubborn (I have 3 tumors, all right next to each other in a row.) But they are smaller than they were. The doc who did the ultrasound had a hard time even finding them, so I took that as a good sign. 👍🏻

I saw my oncologist that same day (who I didn’t have an appointment with, but I think he heard I was there and probably seemed stressed so he popped in.. he’s a really nice guy). He reiterated that he is happy with my progress. He can’t feel the tumors anymore. I responded well to chemo. He is still optimistic I’m going to be just fine. I definitely needed to hear that.

It’s a long road though. I’ve known that all along but I had sort of blocked it out and have taken things one step at a time. Which is the only way I could manage it. But now that chemo is done and I’m looking ahead, there is still a lot to do that I’ve known about but was sort of ignoring. Haha. 🤷🏼‍♀️

I’m having a lumpectomy on July 8th. Which is not only a big deal because it’s surgery, but because we will finally know for sure if there is cancer still present in the breast and if there is any cancer in the lymph nodes. Hopefully not, on both counts. But it is likely that there is still some cancer there, based on my scans, so I need to be realistic about that.

They will be removing the tumors and the surrounding tissue during the lumpectomy. They will also remove one or two lymph nodes (to test them while I’m still in surgery). If it shows that cancerous cells are present, they’ll remove the rest of my lymph nodes in my armpit during the same surgery. (There has been no indication so far about anything in my lymph nodes, so cross your fingers they don’t find any surprises.)

I don’t need to stay overnight. Recovery is about 2 weeks, longer if they have to take all my lymph nodes. It’ll take about a week to get results about the tissue they remove from my breast.

In August I’ll start radiation for 4-6 weeks (5 days a week). Plus I have to get an infusion every 3 weeks from August until January (one year from when I started this whole mess). This is the part I’ve been in denial about. I just don’t want to do it. 🤣 The outcome of the biopsy results will determine the drug they give me every 3 weeks. Shouldn’t have too bad of side effects either way though, from what I understand.

Right now I’m enjoying this next week of feeling good before surgery! And I’m looking forward to getting these tumors OUT. 😀

Target run

Never thought making a run to Target would feel like a big deal, but it was pretty great (right, Sarah?? 😀). I did the drive-up option so I didn’t actually have to go in.

Great day for a little drive. Nice and sunny. And I blared the Backstreet Boys as loud as I could the whole way there (man I miss the Backstreet Boys lol). It was awesome. 😎

So nice to go out and do a normal errand. Went for a walk earlier too. Good day so far all around!

(Oh and if anyone was wondering, the shingles are going away, too. They are much better.) 👍🏻

Shingles?!?

Yup. I have shingles. 😳

Sigh.

I got this rash the other day on my neck and head that I thought was weird. Well it’s gotten worse. Painful and very itchy.

I am on an antiviral med now which will hopefully help a bit.

Turns out shingles is common in cancer patients going through chemo because of lowered immune systems. It’s caused by the same virus that causes chickenpox. If you’ve had the chickenpox (which I did as a kid), the virus can lay dormant for years and then get “reactivated” as shingles.

Shingles can be brought on by stress. Lol. I guess you could say I’ve been a little bit stressed lately. 🤣 Ya know, cancer.. and 5 months of chemo… during a pandemic… home with 2 needy kids. And now shingles!

My life is so ridiculous it’s almost funny at this point. 🤷🏼‍♀️🤪🤦🏼‍♀️😂

Hoping that the shingles is just a little bump in the road though and that my treatment will go smoothly from here on out. 🤞🏻

Seriously, 2020, I’VE HAD ENOUGH.

Coffee Time

One thing I’ve really missed over the past 5 months is my morning coffee. Sure I’ve had coffee here and there, but more out of habit than anything else. When I was nauseous it just wasn’t appetizing and I would only have a few sips.

This morning I wanted coffee and it didn’t make me nauseous! And I enjoyed it! Probably for the first time since January. ☕️ ☕️

It’s been over two weeks now since the last chemo treatment and I’m definitely feeling a lot better each day. Still get very tired easily and I have a few lingering side effects. But I’m happy to be on the upswing. 😀👏🏻